A New Year’s Resolution Resolved!

By Bindu Adai Mathew

So one of my previous New Year’s resolutions (I just won’t admit to which year that was!) has been to publish. Well, truthfully, it goes beyond just being a yearly resolution but something I’ve always “dreamed” of doing.

Well, this is the year! My memoir “38 Candles” has been published to Amazon!

http://www.amazon.com/38-Candles-ebook/dp/B00AOY0RNC/ref=sr_1_1?ie=UTF8&qid=1357043233&sr=8-1&keywords=38+Candles

And I’d like to share the first chapter with you…

Chapter 1:  The Birthday Candles

The flames of 38 candles dance in front of me, flickering and twisting. The happy, smiling faces of my husband and Ava, my one-year old daughter, look on as they eagerly wait for me to make my wish and blow out the candles. I stare mindlessly at the candles, each a marker of a year in my life. So many candles! Are there really 38 candles on that cake? Is it even possible that I have celebrated that many birthdays?

I close my eyes momentarily, silently making my not-so-secret wish, and then breathe in deeply, filling my lungs with air. I manage to blow out all the candles (except a few) as my husband claps. Ava, sensing the excitement, quickly joins in, her tiny hands clapping enthusiastically…and my husband and I both momentarily pause, sharing a look and a smile, as we both marvel at how together we have created such a beautiful, perfect being.

After gorging on the vanilla cake with too much buttercream icing, my husband puts Ava to bed for her afternoon nap while I clean up. As I put the dishes away and wipe down the counter, I gaze at the cake, again troubled by the sheer number of candles on it. It truly seems unfathomable. In a feeble attempt to reassure myself that I have truly celebrated 38 birthdays, as I remove each candle, I quickly attempt to recall what I did for each birthday. Some birthdays 1…2…3…4 are probably forever lost in my childhood subconscious…5 was my first birthday in America, having emigrated from India just a few months earlier. I remember it vividly, probably due to all the pictures taken by my parents. Birthdays 6…7…8…9…10…11 are all a blur, and 12 was my first and only real birthday party with all my friends from school. It was also the year my mom told me that it would be my last birthday celebration. She patted her burgeoning stomach, reminding me that at twelve years old, I was about to be a big sister and far too old now to be having birthday parties…13…14…15…16…17…18 were probably all small family celebrations with a simple homemade birthday cake after dinner…19 was when my college suitemates surprised me with cake and a song at the end of the night after I was convinced they had all forgotten…20 was uneventful as well with nothing more than good wishes from all my friends. My 21st birthday was when my roommate and I watched The Age of Innocence starring Winona Ryder and Daniel Day-Lewis. At that time, it was much more appealing than celebrating it at a bar or a club. I ushered in my 22nd with friends having dinner and planning our life milestones (Meet my future husband at 24, get married by 25, and have kids by 27—I had it all planned!). My 23rd birthday was another evening spent hanging out with friends, followed by a lecture the next day from my dad about the fact that I was getting older and should consider going to India to look for a husband since I wasn’t finding one in the U.S. Birthday number 24 was spent with friends, discussing why Mr. Right still hadn’t shown up in any of our lives and how even my trip to India a few months earlier, which I dubbed as Husband Search #1, had been unsuccessful…25 was spent tweaking my life timeline (Okay, meet my future husband by age 24 26, get married by 25 27, have kids by 27 29.). It was also my first birthday in grad school and I spent it alone…26 was when my grad school friends threw me my first real surprise party…27 was spent with friends again, followed by another talking-to the next day from my dad on how time was running out and I needed to get married ASAP and should consider going to India again….28 was spent with friends, moping about still being single. After another unsuccessful trip to India a few months earlier (Husband Search #2), which almost resulted in marriage (another long story), I came back alone, this time vowing never to go back to India just to look for a husband…29 was spent recovering from another disappointing setup, followed by a cathartic shredding of the paper that detailed the dates I would be married, have kids, etc.,…30 was my amazing trip to Italy as I celebrated the “fabulousness” of my single life. It was my “I don’t need a man” trip…31 was spent busily planning my wedding (I met my husband just four months after my “I don’t need a man” trip to Italy)…32 was my first birthday after marriage where I had a surprise full course breakfast in bed…33 was lunch at Chili’s with hubby…34 was lunch again with just my hubby at Islamorada…35 was my second real surprise party, thrown by my hubby, followed by a weekend trip to Naples, Florida, in an ocean-front suite at the Ritz Carlton…36 was spent in a cozy hotel room overlooking Niagara Falls with subzero temperatures outside…37 was spent recouping at home with my mom and enjoying the birth of Ava just the week before…and now, I was 38!

38.

3838…38…The numbers echo in my head like the rhythmic chiming of a grandfather clock.

38.

Just twelve years from 50. I cringe inwardly as I also realize that I am now officially closer to 50 than to 25.

The irony of it is that to twenty-somethings and teens, I am “old,” an almost forty-something in their eyes. But to the forty-somethings and older people, I am still relatively young, a summer chicken (as opposed to a spring chicken) with her whole life still in front of her.

As for me, I still look at myself and life through a twenty-something’s eye.

But it’s not the number that haunts me…well, at least not just the number, for it is a reminder—not only of what I’ve done each year of my 38 years – but more important, it is a reminder of what I’ve not done.

I think of the career woman I am not. The career ladder I never quite climbed. The six-figure income that I’m still shy of…and worst of all, that deep sinking feeling that at 38 years old, I still don’t know what I want to be when I grow up.

I think of the one argument my husband and I have had over and over again about his desire for me to go back to college to get a different master’s degree, something that I have been determined to put off until I figure out what I am meant to do with my life.

Most of all, I think of the 400-plus-page manuscript stored on my computer hard drive, the one that I finally completed after 10 years of just talking about how I wanted to write a novel. After years of procrastination, a lack of discipline, and countless distractions, I knew the time had come to just do it. So finally, using every spare moment on weekends and evenings, I finally made time to write the novel I had always known I was meant to write, certain I was destined to be on the New York Times bestseller list. I completed it just before Ava was born. But now that same novel, post rejection by several agents, remains untouched on my computer hard drive, on the brink of being shelved and forgotten somewhere in cyberspace.

38.

For the rest of the day and into the night, the number hangs over me like a black cloud. It rings in my head over and over again, like a death knell, reminding me that time is running out.

Part 5 of Interview with Matt Patterson, Author of My Emily

Emily wasn’t born perfect – so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever – or so one might think. This short story tells how the life of one little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives – even with their many “imperfections.” –From My Emily, by Matt Patterson.  

Matt Patterson, the author of My Emily, is a writer who decided to finally share the story of his daughter with hopes to raise funds for those who are raising children with special needs and fighting cancer. My Emily is indeed a testament of a father’s love for his daughter. More importantly, it is a heartwarming memoir of how in just a short time here on this earth, a young daughter transformed the life of her father, and all those who came in contact with her.

In this month when FemmeFuel is contemplating the ideas of luck vs. faith, we interview Matt Patterson, who on the surface may seem “unlucky” when his daughter Emily is born with Down Syndrome, and later diagnosed with leukemia. However, as Matt shares, it was he who was blessed by God in the call to serve as Emily’s father.

In case you missed it, click here to read Part 1

Click here to read Part 2

Click here to read Part 3

Click here to read Part 4

Do you find Jesus most connected to our lives when you consider Him (a) with us in our suffering or (b) as the one who rescues us from our suffering?

I might be taking the easy way out – but I’m going to say both. Allow me to explain.

When Emily was born and we heard the word, “leukemia,” we were devastated. He was with us. We sought Him out in prayer long before we heard this diagnosis, so we knew He was with us.

Once Emily passed, I was mad at God. I was ticked. I wanted nothing to do with Him.

To allow His angel to suffer as such, well, I didn’t have much use for a God that permitted that. He rescued me by having me tell others of her passing. A heart that was full of anger and venom was cleansed by His mercy. By having me speak with others over and over again, it made me realize the comfort that He provides. At a time when I could have completely forsaken him, He rescued me.

Do you have a more sincere, true faith after being on this journey with Emily? How is it different from the faith you had prior to your experiences with Emily?

 Yes, I most certainly do! I can now say, “But I trust in you, O Lord; ‘You are my God.’ My times are in your hands.”(Psalm 31:14-15) I could have never said that even three years ago.

At the time of Emily’s birth, diagnosis and passing,  we were members of the Church of Jesus Christ of Latter-day Saints (also known as Mormon or LDS).  I do have to admit at times I felt Emily’s conditions were the Lord’s way of punishing me for not being the perfect member of that religion.

It wasn’t until three years ago we attended a church and the message spoke heavily of legalism. It was the second time we visited a Christian church and when I heard the statement, “You have to ask yourself this question. Am I practicing a religion or do I have a relationship with God?”

After living my whole life entrenched in a religion that based my level of salvation on my deeds and accomplishments, and to hear this question. It was life-changing. As soon as my wife and I heard it – we looked at each other simultaneously. When we left that night, I asked my wife if she would support me leaving the LDS chuch. She gave me a wonderful, one word answer – “Absolutely.”

So today, to know what mercy and grace are – (words we never heard before) – well, it’s a long way from the burden of guilt and depression associated with legalism.

Order My Emily today on Amazon to help support families who are raising children with special needs and cancer. To learn more about Emily’s story, check out My Emily on Facebook.

Part 4 of Interview with Matt Patterson, Author of My Emily

Emily wasn’t born perfect – so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever – or so one might think. This short story tells how the life of one little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives – even with their many “imperfections.” –From My Emily, by Matt Patterson.  

Matt Patterson, the author of My Emily, is a writer who decided to finally share the story of his daughter with hopes to raise funds for those who are raising children with special needs and fighting cancer. My Emily is indeed a testament of a father’s love for his daughter. More importantly, it is a heartwarming memoir of how in just a short time here on this earth, a young daughter transformed the life of her father, and all those who came in contact with her.

In this month when FemmeFuel is contemplating the ideas of luck vs. faith, we interview Matt Patterson, who on the surface may seem “unlucky” when his daughter Emily is born with Down Syndrome, and later diagnosed with leukemia. However, as Matt shares, it was he who was blessed by God in the call to serve as Emily’s father.

In case you missed it, click here to read Part 1

Click here to read Part 2

Click here to read Part 3

What scriptures, poems, songs or books helped you along your journey with Emily? 

I’m one who loves to find words – whether they’re from scripture, songs, books – to gain a greater sense of comfort or understanding of a personal situation.

Among scriptures, I find – Philippians 4:6-7: Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.  And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Also, 1 Peter 5:7 – Cast all your anxiety on him because he cares for you.

2 Corinthians 1:3-4 – Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.

And in regard to serving others, Romans 8:28 strikes me: And we know that in all things God works for the good of those who love him, who have been called according to his purpose.

There are also lyrics I share in the book of a lullaby titled, “Goodnight Emily” that bring me back to the nights I would rock Emily to sleep. It was our time together each and every night.

Goodnight Emily, sleep tight Emily,
Jesus keep your dreams.
The God above is a God of love
so, little girl sleep in peace.

Currently, there are numerous Christian Contemporary songs and groups that bring me closer to God, inspiring me in moments of stress or times where I just need to take a breather. I can only say that the work of these artists have brought such a calmness in my life when I’ve needed it the most. I really love finding lyrics that touch me with regard to what I have endured in the past or what I’m currently experiencing.

In the past, I was previously a U2 and Bruce Springsteen fanatic. Now, I only listen to artists and groups such as The Robbie Seay Band, Sanctus Real, Matthew West, Casting Crowns, and the Michael Gungor Band. I’m a better person by making this subtle change in my life. 

Stay tuned tomorrow for more of Matt Patterson‘s interview with FemmeFuel…

Order My Emily today on Amazon to help support families who are raising children with special needs and cancer. To learn more about Emily’s story, check out My Emily on Facebook.

Part 3 of Interview with Matt Patterson, Author of My Emily

Emily wasn’t born perfect – so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever – or so one might think. This short story tells how the life of one little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives – even with their many “imperfections.” –From My Emily, by Matt Patterson.

Matt Patterson, the author of My Emily, is a writer who decided to finally share the story of his daughter with hopes to raise funds for those who are raising children with special needs and fighting cancer. My Emily is indeed a testament of a father’s love for his daughter. More importantly, it is a heartwarming memoir of how in just a short time here on this earth, a young daughter transformed the life of her father, and all those who came in contact with her.

In this month when FemmeFuel is contemplating the ideas of luck vs. faith, we interview Matt Patterson, who on the surface may seem “unlucky” when his daughter Emily is born with Down Syndrome, and later diagnosed with leukemia. However, as Matt shares, it was he who was blessed by God in the call to serve as Emily’s father.

In case you missed it, click here to read Part 1

Click here to read Part 2

Did any questions about suffering lead you to retreat from people, or reach out more towards others? 

Shortly after Emily’s passing, I think that both my wife and I withdrew from people. I personally had a very deep anger toward God.

Here’s where my “why” question came in to the picture. Why does a God allow a child – not just my child, but any child – to suffer through this type of illness and the treatments associated with it? Why does a God allow a child with special needs to suffer like this? Why does a merciful God allow a child to go through this illness and harsh treatments to allow her to go into remission and then, allow her to relapse, and again, start an even more intense regimen of chemotherapy? Those were my questions regarding suffering and shortly after Emily’s passing, I cut off all communication with God. I was mad. I was furious. I wasn’t going to give Him the time of day. The farther I pushed away from God, however, the more opportunities He gave to me to share Emily’s passing with those I came into contact with on a daily basis. I finally came to the conclusion that God gave me these sharing experiences with others as a way of healing. Are there days I still cry while sharing it? Of course. I have always wanted to help those families with children who have special needs or those battling pediatric cancer. I just didn’t know how to do so. Twenty years later, he gave me a vehicle to share her story and hopefully help others.

How would you advise other people on how to minister to or support a family going through what your family has gone through with Emily? What do you wish was done for your family during that time?

First, I have to say that the blessings that come from serving, comforting and supporting others are absolutely immeasurable. 

 It’s my thought and belief that each of us grieve differently. For example, I have always wanted to share Emily’s story, but was I ready to minister and comfort others, say 10 years ago? I would have to say no.  Now that I have a better understanding of the grieving process, I can truly say my passion to share her story and help others is at a level that’s difficult to quantify. It becomes very personal and emotional some days. There are still days when I need to lean on those closest to me for support and comfort. I have to say there was so much done for us during Emily’s illness and passing, I don’t look back and say, “Well, it would’ve been nice if they were there more for us.” We consider ourselves blessed for the support we did receive.

Stay tuned tomorrow for more of Matt Patterson‘s interview with FemmeFuel…

Order My Emily today on Amazon to help support families who are raising children with special needs and cancer. To learn more about Emily’s story, check out My Emily on Facebook.

Part 2 of Interview with Matt Patterson, Author of My Emily

Emily wasn’t born perfect – so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever – or so one might think. This short story tells how the life of one little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives – even with their many “imperfections.” –From My Emily, by Matt Patterson 

Matt Patterson, the author of My Emily, is a writer who decided to finally share the story of his daughter with hopes to raise funds for those who are raising children with special needs and fighting cancer. My Emily is indeed a testament of a father’s love for his daughter. More importantly, it is a heartwarming memoir of how in just a short time here on this earth, a young daughter transformed the life of her father, and all those who came in contact with her.

In this month when FemmeFuel is contemplating the ideas of luck vs. faith, we interview Matt Patterson, who on the surface may seem “unlucky” when his daughter Emily is born with Down Syndrome, and later diagnosed with leukemia. However, as Matt shares, it was he who was blessed by God in the call to serve as Emily’s father.

In case you missed it, click here to read Part 1

Now that you have gone through this journey with Emily, do you find it harder or easier to discuss the big questions about God?

Today, I find it easier to discuss the big questions about God. I feel like my wife and I have traveled a path that has prepared us. I say it’s easier, but I think if you ask anyone who knows me or who has heard our story, they will tell you I can be quite emotional.

The “why” question is one, I believe, we all ask when we’re confronted with difficult times. Whether it be a serious illness, the loss of a loved one, or any other moment that seems to try our faith. We need to remember that it’s okay to ask God questions, but we also need to be mindful that God has never promised to answer them either. Knowing the “why” isn’t going to take the pain away. We have to learn to ask other questions other than “why”.

For us, it was initially the birth of Emily. We were in our early-to-mid 20s and we were so excited about the birth of our first child. The following morning we were given the news that Emily was born with Down Syndrome. It was like a punch in the stomach. Initially, I had no idea whatsoever what Down Syndrome was. I was truly clueless. Then, just two years later – a diagnosis of leukemia. If the first punch in the gut hurt, the second brought me to my knees. I’m of the belief that we’re very capable of finding God’s answers to our “why” questions. Now, His answers may not be the ones we want, but if we’re willing to listen closely, these answers will be of great comfort to us.

Based on your experience with Emily, do you believe in luck? Did you ever think that you got dealt a bad hand in life?

I’m not a real big believer in luck.  Do I believe in coincidence? Not really. I do not believe I got dealt a bad hand! Quite the opposite! Was it a painful time? Yes, absolutely! I feel the Lord blessed us with Emily – no doubt whatsoever. It was our destiny to be her parents. We are such better people for having gone through this. I consider myself “lucky” to be able to share her story and perhaps touch a heart or two. It has given me such an opportunity to serve. Whether it be at cancer or grief support groups, or to an individual in our congregation or just a person in passing or even on-line, I feel I’m so very blessed to be able to perhaps help in some small way.

Stay tuned tomorrow for more of Matt Patterson‘s interview with FemmeFuel…

Order My Emily today on Amazon to help support families who are raising children with special needs and cancer. To learn more about Emily’s story, check out My Emily on Facebook.

Interview with Matt Patterson, Author of My Emily

Emily wasn’t born perfect – so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever – or so one might think. This short story tells how the life of one little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives – even with their many “imperfections.” –From My Emily, by Matt Patterson.

Matt Patterson, the author of My Emily, is a writer who decided to finally share the story of his daughter with hopes to raise funds for those who are raising children with special needs and fighting cancer. My Emily is indeed a testament of a father’s love for his daughter. More importantly, it is a heartwarming memoir of how in just a short time here on this earth, a young daughter transformed the life of her father, and all those who came in contact with her.

In this month when FemmeFuel is contemplating the ideas of luck vs. faith, we interview Matt Patterson, who on the surface may seem “unlucky” when his daughter Emily is born with Down Syndrome, and later diagnosed with leukemia. However, as Matt shares, it was he who was blessed by God in the call to serve as Emily’s father.

Describe any crises of faith you experienced when Emily was born with Down Syndrome. What do you think of talking about your faith like this?

I think the initial shock of hearing the words “Down Syndrome” was the initial crisis, if you want to call it that. I think hearing it the next day was quite the blind-sided hit. I made calls to anyone and everyone the morning Emily was born with so much enthusiasm and excitement. Then, when hearing the news the following morning, I had to make a second round of calls. Shortly thereafter, once the shock had worn off, we felt so very blessed to have Emily. She was so full of love. We felt blessed to have her.

The actual diagnosis of leukemia took on a form of panic that I had never experienced. The first words that gathered in my mind – well, at least once I found out what leukemia was – were cancer and death. I had never lost anyone close to me before. This would be the first time I would have my faith tested and ask, “why”?

I never felt like an atheist or agnostic during this whole experience. I have always been a person who believed in God. Although, to say my faith was being tried would be an absolute understatement. I have always been a prayerful person. The thing is, I was one who gave thanks quickly and expounded long and hard on the things I needed. In this situation, I was praying for God to make my daughter better. Rid her of this dreaded cancer. At times, I felt like I was bargaining or bartering with Him in my prayers. “If you heal Emily, I’ll do this or never do that again.” My faith seemed like a daily roller coaster, dependent on the news we received each day from the medical staff.

I did learn from our GriefShare group that God’s story explains to each of us why we suffer and die. We’re living smack dab in the middle of it and it is the key to our understanding. I love talking about my faith like this because it allows me to grow. I have so much to learn. Even though Emily passed away 20 years ago, I’m just learning about my faith and how to heal. I believe that in order to heal, I need to be an instrument to minister to others.

What are the clichés about God that you heard in terms of Emily’s life? Why are they inadequate? What would be better to say instead?

To be honest, I really can’t remember too many – although I can remember rolling my eyes. No matter what was said, of course, some do hold a level or element of truth, but it almost comes off like a greeting card and not a genuine statement of concern or belief.  I believe people who go through this rough period in their lives just want authentic sincerity and concern. Pray with us. Cry with us. Hug us. Be genuine. Be sincere. Words don’t have to be eloquent. Actions speak louder than words. Actions are not a cliché…

Stay tuned tomorrow for more of Matt Patterson‘s interview with FemmeFuel…

Order My Emily today on Amazon to help support families who are raising children with special needs and cancer. To learn more about Emily’s story, check out My Emily on Facebook.